Case Report Epidermolisi Bollosa. Bibliografia

Epidermolisi Bollosa Distrofica e presa in carico multidisciplinare

Fine, J. D., Hintner, H. (Eds.). (2009). Life with Epidermolysis Bullosa (EB): Etiology, Diagnosis, Multidisciplinary Care and Therapy. Vienna: Springer.
Bruckner-Tuderman, L. (2010). Dystrophic epidermolysis bullosa: pathogenesis and clinical features. Dermatologic Clinics, 28(2), 107–114.
Has, C., Bauer, J. W., Bodemer, C., Bolling, M. C., Bruckner-Tuderman, L., Diem, A., et al. (2020). Consensus reclassification of inherited epidermolysis bullosa and other disorders with skin fragility. British Journal of Dermatology, 183(4), 614–627.
El Hachem, M., Zambruno, G., Bourdon-Lanoy, E., et al. (2014). Multicentre consensus recommendations for skin care in inherited epidermolysis bullosa. Orphanet Journal of Rare Diseases, 9(76).
Denyer, J., Pillay, E., & Clapham, J. (2017). Best Practice Guidelines for Skin and Wound Care in Epidermolysis Bullosa. DEBRA International.
Fine, J. D. (2016). Epidemiology of inherited epidermolysis bullosa based on incidence and prevalence estimates from the National Epidermolysis Bullosa Registry. Journal of the American Academy of Dermatology, 74(3), 512–519.

Neuropsicomotricità, sviluppo motorio e cognizione embodied

Piaget, J. (1952). The Origins of Intelligence in Children. New York: International Universities Press.
Vygotskij, L. S. (1978). Mind in Society: The Development of Higher Psychological Processes. Cambridge, MA: Harvard University Press.
Thelen, E., & Smith, L. B. (1994). A Dynamic Systems Approach to the Development of Cognition and Action. Cambridge, MA: MIT Press.
Wilson, M. (2002). Six views of embodied cognition. Psychonomic Bulletin & Review, 9(4), 625–636.
Adolph, K. E., & Hoch, J. E. (2019). Motor development: Embodied, embedded, enculturated, and enabling. Annual Review of Psychology, 70, 141–164.
Gottlieb, G. (1991). Experiential canalization of behavioral development: Theory. Developmental Psychology, 27(1), 4–13.

Funzioni esecutive, attenzione e sviluppo cognitivo

Diamond, A. (2013). Executive functions. Annual Review of Psychology, 64, 135–168.
Miyake, A., Friedman, N. P., Emerson, M. J., Witzki, A. H., Howerter, A., & Wager, T. D. (2000). The unity and diversity of executive functions and their contributions to complex “frontal lobe” tasks: A latent variable analysis. Cognitive Psychology, 41(1), 49–100.
Anderson, P. (2002). Assessment and development of executive function during childhood. Child Neuropsychology, 8(2), 71–82.
Barkley, R. A. (1997). Behavioral inhibition, sustained attention, and executive functions. Psychological Bulletin, 121(1), 65–94.

Deprivazione motoria, esperienza corporea e sviluppo neurocognitivo

Campos, J. J., Anderson, D. I., Barbu-Roth, M. A., Hubbard, E. M., Hertenstein, M. J., & Witherington, D. (2000). Travel broadens the mind. Infancy, 1(2), 149–219.
Smith, L. B., & Gasser, M. (2005). The development of embodied cognition: Six lessons from babies. Artificial Life, 11(1–2), 13–29.
Iverson, J. M. (2010). Developing language in a developing body: The relationship between motor development and language development. Journal of Child Language, 37(2), 229–261.

Strumenti di valutazione citati nell’articolo

Movement ABC

Henderson, S. E., & Sugden, D. A. (1992). Movement Assessment Battery for Children. London: The Psychological Corporation.
Henderson, S. E., Sugden, D. A., & Barnett, A. L. (2007). Movement Assessment Battery for Children – Second Edition (Movement ABC-2). London: Harcourt Assessment.

VMI

Beery, K. E., & Beery, N. A. (2010). The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI). Minneapolis: Pearson.

Batteria Italiana ADHD (BIA)

Marzocchi, G. M., Re, A. M., & Cornoldi, C. (2010). BIA – Batteria Italiana per l’ADHD. Trento: Erickson.
Marzocchi, G. M., Re, A. M., & Cornoldi, C. (2021). BIA-R – Batteria Italiana per l’ADHD-Revised. Trento: Erickson.

Torre di Londra

Sannio Fancello, G., Vio, C., & Cianchetti, C. (2006). Torre di Londra: Test di valutazione delle funzioni esecutive (pianificazione e problem solving). Trento: Erickson.
Shallice, T. (1982). Specific impairments of planning. Philosophical Transactions of the Royal Society of London, 298(1089), 199–209.

Neuropsicomotricità dell’età evolutiva e riabilitazione

Ajuriaguerra, J. de. (1974). Manuale di Psichiatria del Bambino. Milano: Masson.
Le Boulch, J. (1981). Lo sviluppo psicomotorio dalla nascita a 6 anni. Roma: Armando Editore.
Lapierre, A., & Aucouturier, B. (1977). La simbologia del movimento. Roma: Edizioni Psicomotricità.
Sabbadini, L. (1995). Manuale di neuropsicologia dell’età evolutiva. Bologna: Zanichelli.

Sitografia

Organizzazioni e linee guida sull’Epidermolisi Bollosa

Test e strumenti clinici

Letteratura scientifica e database